Cerebral Palsy Space
One time...At a Time
Mision & Vision
To witness the inclusiveness of the children with cerebral palsy and their caregivers in the society.
To promote the respect and recognition of the children with cerebral palsy and caregivers, protection of their rights as well as inclusion in key policy decision making.
Cerebral Palsy Space (CEPAS) is a registered community-based organization (NJI/CBO/1/2020/349) founded in 2020 by Ms. Susan Njeri, inspired by her daughter Princess Gathoni, who has lived with cerebral palsy (CP) since 2010. Originating as a parent support group in 2016, CEPAS addresses gaps in CP care, particularly in Dandora and Korogocho, by tackling challenges like lack of awareness, cultural stigma, and limited resources. Through collaborations with donors and the community, CEPAS organizes activities to support caregivers and improve the lives of children with CP, focusing on mobility, feeding, and therapy. Currently operating from rented premises in Dandora Phase I, the organization advocates for proactive, affordable, and sustainable solutions for families affected by CP.
PROGRAMS UNDER CEPAS:
Daycare centre
Cerebral palsy (CP) affects balance and coordination, making it difficult for children to achieve milestones like sitting, standing, and walking. CEPAS provides a daycare where parents can leave their children while they work. To ease transportation, we hire a daily shuttle, ferrying 15 children at a cost of Ksh.100 per child.
Therapy services
Children with CP require therapy and training to achieve their milestones as well as to prevent secondary disabilities. We have some volunteers who come at least twice a week to attend to kids for occupational therapy.
Assistive devices
Growing children with CP need wheelchairs, splints, and corsets to aid mobility and prevent complications. We collaborate with donors and the National Council for Persons with Disabilities to secure these essential devices.
Diaper drives
Children with CP often rely on diapers due to mobility and communication challenges. Every three months, we mobilize diapers for 50–100 children, helping families struggling to balance food and hygiene needs.
Feeding program
Many families raising children with CP struggle to afford food. With partners like Farm-to-Feed, we provide vegetables and farm produce to 50 families weekly, covering three days’ worth of meals. Proper nutrition is vital due to their weakened immunity.
Creating Awareness
CEPAS fights stigma and misinformation surrounding CP, ensuring affected children are embraced, not abandoned. We engage communities, medical practitioners, and social media to educate and advocate.
Guidance and counseling
Parenting a child with CP can be overwhelming. Through workshops and home visits, we support caregivers, fostering acceptance and emotional well-being for both parent and child.
Empowerment and sustainability
CEPAS strives for self-sustainability. We train mothers in tailoring, producing mattress covers and school uniforms for income. Young people from the community also enroll in tailoring courses, creating job opportunities while supporting our mission.
Day Care Centre
CEPAS provides a daycare for children with cerebral palsy (CP), offering parents a safe place to leave their kids while they manage daily tasks, with daily transport services for 15 children funded by parents.
Creating Awareness
CEPAS combats stigma and superstitions around CP by educating communities, encouraging acceptance, and promoting proper childbirth care to prevent CP.
Diaper Drives
CEPAS organizes quarterly diaper drives, providing essential diapers for 50-100 children with CP who face communication and mobility challenges.
Guidance and counseling
CEPAS offers workshops and home visits to support caregivers, helping them cope with challenges and fostering acceptance and self-care.
Theraphy Services
Volunteers offer occupational therapy twice a week to help children with CP achieve milestones and prevent secondary disabilities.
Assistive Devices
CEPAS partners with donors to provide wheelchairs and other devices, enabling mobility, social interaction, and preventing bedsores for children with CP.
Empowerment and Sustainability
CEPAS empowers parents through tailoring and beadwork projects, generating income to sustain the center and support families.
Feeding Program
In partnership with organizations, CEPAS supplies weekly food packages to 50 families, addressing poor feeding patterns and suppressed immunity in children with CP.